Together, we are stronger

About Danny

The foundation was established by Danny Fudge-Harman in 2017, propelled by his own journey with the disease. Symptoms first emerged in 2011, marked by weakness in his right hand. By 2013, he received the diagnosis of Motor Neurone Disease (MND). Today, Danny faces significant challenges; he is unable to walk, utilise his arms, or breathe unaided. Confined to a wheelchair and reliant on a feeding tube for sustenance, he perseveres. Remarkably, he remains active within the property industry, employing specialist eyegaze technology to interact with clients and address their property needs.

MND, is a terminal Neurodegenerative Disease (NDD) disrupting the central nervous system’s signal transmission to motor neurons essential for movement control. With a grim prognosis, half of MND patients are expected to survive only 3-5 years post-diagnosis. As the disease progresses, limb mobility, speech, and respiratory function gradually deteriorate.

Yet, Danny confronts these adversities daily, balancing work responsibilities, fundraising and spending time with his wife Annabella, two children, Poppy and DJ and his dog Reggie. He attributes much of his resilience to his mindset, viewing it as pivotal in extending his lifespan and nurturing hope for a cure. Despite his personal struggles, Danny remains steadfast in his advocacy for MND patients and their families. He offers support and guidance, recognizing the toll exacted by the disease’s relentless progression on both mental and physical well-being.